The point, though, is that I missed the awareness week once again. Every year since I was diagnosed (4 years ago!... wow I didn't realise it had been that long) I've found out about the week just after it happens. I guess there's nothing to stop me from making people aware now, and that's kinda why I'm blogging about it, but it's not as neat when it's not a mass effort.
Still, letting people know about Wegener's Granulomatosis is important becaues it's been a major thing in my life. I posted about it back in march and things now (concerning my illness anyway) are about the same. My WG is still in remission (YAY! ... knock on wood) and I'm doing great, health wise. I can't believe that I've been living with it for four years.
I was actually really lucky- relatively anyway. I was diagnosed before any permenant organ damage could happen and I had a fairly easy treatment. Granted, the treatment wasn't really all that easy, but I didn't have any horrid side effects from any of the medication. Even the weight I gained from the prednisone was pretty minor compared to what some people go through with that lovely little drug.
Of course, there are always problems. I mean, at 17 it was not an easy thing to deal with. And now that I'm healthy again, it's hard for me to motivate myself to do the things I need to do. For example, I really need to make an appointment with my doctor - just for a check up. The thing is, it's hard to convince myself that I really need to see him. I feel fine. No symptoms. I very much don't want to spend 2 hours in the doctor's office, get poked with a needle, and pee in a cup just to get told that I'm doing fine.I need to do it anyway.